Reanna always has a count down list :) 115 days 'til school is out, 42 days 'til the concert, 18 days 'til vacation, etc, etc, etc. Now I have a count down. 17 more infusions. I always listened to Reanna's count downs, but they never really had a meaning for me. I don't get summer vacation, and I very rarely go to her concerts (well, I did drag her to see J.T. with me though!) so while every day she could tell you how many days until each function was to come, I would eagerly listen. Now, I've got my own count down. This normally isn't my sort of thing, but the treatments are so bad, that actually gives me something to look forward to.
Treatment #2 went by pretty fast. I had a new nurse, Parker. He was really nice. He asked a lot of questions, and then told me that he had done the same treatment about 7 years ago. He was very helpful. This time I brought a book, and the time went by pretty fast. When I got home from the appt, my dad, Tina & Tai had just gotten to the house! I was so excited to see them all. I hadn't seen Tina for about 3 years, and I had never met Tai, although I talked to her on the phone and saw many pictures of her. She is even more beautiful in person! I just love her. She is such an Angel. Shortly after I got home and hung out with them, I started not feeling well. So once again, I had to retreat to my room. Only this time was worse. I could not hold any food down. It was just awful. Several hours just lying in bed, fully clothed with the heater on and many blankets, and I was still freezing. By 6pm or so, I started feeling kinda better, so I got out of bed for a bit. I had a small cup of Jello and some crackers for dinner. That was all I could manage to hold down. Shortly after eating, instead of getting really cold, I was sweating. Hmm, I didn't feel that the night before? But yep, my clothes were wet with sweat. Must be another reaction to the medicine.
For treatment #3, my dad took me to the hospital. Well, first I had to drink 48 oz. of water (I only drank 36 oz.) and have an ultrasound. OMG, talk about pain. That is the most awful feeling to have someone pushing on your bladder when it is full of water! Luckily it was over pretty fast, and I got to use the restroom... whew... After that, we went to my treatment. My dad came in with me, and Parker was my nurse once again. I informed him of my nausea the day before, so he was working on getting me a prescription for that. We were there for about 2 hours. Wow, how fast the time goes by when you get used to it. The prescription wasn't ready by the time we left, but I did get a call to pick it up anytime over the weekend. Same thing happened when I got home, I was able to hang out for a bit, then I got sick and had to go back to bed. I have to get completely under the blankets and be fully covered. It feels like the middle of winter and I can't move because the warmth of my body is only where my body currently is, so if I move anything, it gets really cold. Every time I start to fall asleep, the phone rings or someone comes in or something. It never fails.
My cousin Tina called me too. She was so helpful. She is going to come over next weekend and help me out. She is going to make some meals, clean house, and hang out with me for a while. I can't wait. I hate to have people over assisting me (Yeah right!) but I'm learning to accept help. Ruby & Barbara even volunteered to bring me some soup. And my old friend Amy called out of the blue, and she wants to take me to a few appts to, if there is a time that I don't have a ride. I can't believe how much everyone is helping out. Thanks everyone :)